SPD and SID myths

Sensory Processing Disorder/ Sensory Integration disorder myths and truths. Keep in mind. These are SPD and SID specific except for the second. So, we can obviously have other diagnosis’s too. 

 We very likely have food sensitivities (Which are medically routed). But, we defiantly DON’T have Eating Disorders. 

We don’t have empathy. (This is actually an ASD myth) That doesn’t mean we know how or when to express the empathy appropriately, that we feel it like an NT, or that we seam to have it when we should. 

We may be depressed, but, it’s core routes on why, and representation differ frequently. 

Our structure, need to be right, and critical nature,  aren’t mood related or negative based. At ALL. 

We have allergies. Well, we could have them too. Our avoidance or negative reactions to things AREN’T allergies at all. 

 

Corn and GF Meds

   Although this is rare. I’m pretty sick, yesterday both on and off anti-nausea meds I threw up 11 times. And the anti nausea meds provided at a clinic, were given through an IV. Yesterday, most of my day was at an urgent care clinic. Which is kinda like a small ER. Without 24 hr service. And isn’t connected to a hospital. This clinic, has a very small bed for all their patients. And off course fluorescent lighting, they just HAD to keep on.  I was so glad my light sensitivity wasn’t significantly effected buy it. 

   Anyway, I have a stomach bug. With added excruciating sharp belly pain which till today, wasn’t given any meds that help that.  That started Friday night. I’ve been in bed most of today.  And pedialyte unflavored is my only drink option, for now. 

    Anyway, I have a rice intolerance, am GF, and have recently developed a corn intolerance. Sadly, Tylenol (which most are GF) aren’t rice or corn free. My mother is trying to get me not care about if foods or meds have any of my intolerances in them. Which off course, isn’t helping. 

   So, since some of us are GF, and corn free. I found this link to find meds we can take. I haven’t checked out her GF Meds link.  But, she has one on this page. 

Meds that are free of gluten and corn

Synesthesia “An Eyeful of Sound” from the Spectrum blog

This film about Synesthesia is called “An Eyeful of Sound”. 

An Eyeful of Sound

This is a very rare form of SPD that only about 4% of humans worldwide are known to have. At points, this approximately 10 minute video can be a little loud. So, this maybe sensory difficult for some with SPD however.  In it, you’ll see and here about synesthesia. This is not on utube.  This isn’t a Ted talk (Unlike my last Synesthesia post, with a video linked.). It is VERY different. And there are different forms of Synesthesia too. Interesting, right? 

   Enjoy! I did! 

Spectrum, the film’s blog

The upcoming films blog (of the Spectrum documentary) has some very good videos/ posts.  I haven’t seen all the videos on it. Nore have I read and remember all the interviews. And some are Vimeo video’s not utube based. But, a few, I saw before today. And I just saw many of the videos as well. There not ALL SPD related. And in this post (If at all) I’m not going to cover all of the videos I like on this blog page. But, the first video I believe it is, with the little boy is very good. Also, there’s a trailer of a family with an autistic son called Mabul (The Flood) it’s not in English nore available for US or Canadian DVD players. Only for DVD players from region 2, countries.  And I don’t believe it’s sub-titled in English either, the trailer wasn’t.  

 

 In my next post I’ll highlight one more video I liked a lot from this link. However, it will have a different link. 

Main blog for Spectrum, the Film page on tumblr

Spectrum, a documentary about Sensory Perception

Want to see an upcoming documentary trailer for a film about Sensory Perception and Autism? Temple Grandin is in it.  You do!? Great! It’s called Spectrum, and if you figure out how and when to see the full documentary before I post how here. Please DO SHARE buy commenting or e-mailing me.  Here’s the link to the trailer. I’ll share anouther to a blog with interviews on it. In my next mini-post. 

 

Spectrum’s Vimeo trailer 

Happy New Year! 

 

 

SPD commute in NYC!

    Rachel Simone is the admin of the best SPD adults who have it support group on Facebook. She has it too off course. But, unlike me, she doesn’t have ASD or ADHD. But, for this utube video she shared today (And she knows I’m sharing it here too, off course) the fact that we both have SPD is enough.  According to recent research.  (see spdfoundation.net/otherdisorders.html) Most people with ASD have SPD. However, most with SPD DON’T have ASD. 

  As you should know, some with ADHD have SPD. But, she doesn’t have that either. Which is living proof you don’t need either to have SPD. 

   Anyway. I like her SPD experience’s demo- so, you can get a better taste of what life with it is like. I recommend watching it atleast twice. Especially if you are different. However, if you have SPD, make sure your ready for about a 5 minute commute, in one bustling, major city! And for you. Turn the sound slightly down.

   Do, I relate to her experience? Somewhat. Do I understand it in a very real way. Yes. But, the details for that, is for anouther time.   And my next post will have a link to her blog! Which is all about SPD research and stories.  

Allergic Living, US and Canada only IMPROVED

For a limited time, Allergic Living Magazine is offering year and two year gift subscriptions for there best rate yet! . The special rate is only available this month. Each year they publish 4 magazines. This is the ONLY SPD/ Environmental Illness, somewhat related magazine, I’m currently highly considering a renewal for at the moment. And the GF and More Food Sensitivities mag. I’m NOT renewing.

I’m looking to renew Allergic Living Mag. now, not only due to the holidays/ great temporary discount, if I can get it gifted to me. It’s also do to the fact that when I called them. And suggested improvements, and told them I wanted to cancel my subscription. Among other info. They not only changed my mind to try it longer, they promised they’d incorporate my suggestions into there future magazines immediately. And after recently getting there latest one. (The first one published that was created after our discussion) thus far, they have delivered some on that promise! Do you know how hard it is to change my mind and please me sometimes? This one, being some of those times.

However, I must say, most magazines I’m not that found of. And I’ve tried SEVERAL in different categories. Regardless of there topics. I also should say, that a lot of the info found in magazines (With a few exceptions at most) repeat tons of info you can find elsewhere, or info you can come up with not too much difficultly on your own. A lot of which, can be accessed for FREE.

But, back to this magazine. Their single, listed, issue price is 5.95 each. There CURRENT normal prices for subscriptions are, 19.99 for 1 yr, and 29.99 for two years, 8 issues. As a gift you can give it or receive a 2 yr subscription for about 27.$ and a 1 yr for about 18$ normally. This is in US currency only. However, for a limited time you can gift give or receive it for 19.99 for two years or 14.99 for 1 year. Which is atleast 50% off when purchasing the two yr plan! The two yr plan is 2.50 per issue which is under there production costs to make and send you each magazine. The 1 year discounted cost is a little under 3.50 an issue with tax. See the description below in the link below for more details. This is one of a very small number of magazines (That I can tell) sold in the US, that address MCS/ mold issues sometimes. I’d love for some of you effected buy MCS who subscribe, to contact there editor to include more about these issues in any of there magazines. However, before doing so, you need to learn first what they have already covered along those lines. But, you probably knew that. Now didn’t you?

The only other way to access this magazine is buying it before they sell out. At certain Whole Foods across the country and possibly in Canada. However, they price it above 5$ a magazine.

Best price for allergy magazine

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Check my other blog

Today I posted 2 posts on my other blog some of you may be interested in. The first post on my other blog is about a book that helps parents with sp. Needs kids. It’s free to a couple dollars but, for a limited time. Tip, Julie’s other book is also Kindle avail. And available via the Amazons new, Kindle reading program now two!

The 2nd post was for a GI, Celiacs, live or recorded event hosted tonight online for Americans and Canadians, that must be paid in for in US or Canadian currency for 5$. However, if you know when to get free knowledge of this ( Like via Tom in the present Free online Origins conference) , are beyond the basics, or can’t attend this. I wouldn’t worry to much about it.

That blog is disabilityadvocate1.com

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MCS Online Support Group, Research Survey

Do you have, or know of anyone with Multiple Chemical Syndrome who has been part of ANY online support group(s)? Or someone with issues with wireless signals, electro magnetic data? Or who has a metal sensitivity? If not, are you in a support group that supports anyone online with these issues? If you are, then your help (Buy completing a maybe 10-20 minute survey.) Could contribute to further help, the professionals, find answers for these communities. Or atleast help them understand your supports. Your personal info will of course be kept confidential. You may also, find ways to improve your condition as well! Wouldn’t that be AWESOME!?

I took it yesterday. After, you start it, your allowed to skip any uncomfortable questions, or pause it, to complete it later.

Doctor Tarryn Phillips, from La Trobe University ( A major university throughout Australia). conducts this study. And (His ?) contact info can be found via the article on Planet Thrive and via the intro of the following link. Which is a link to the survey you or your friend or loved one can check out, and participate in.

https://qtrial2014.az1.qualtrics.com/SE/?SID=SV_6J1NgkwBq84vlI1

Resource for this post came from-

I found this, under articles, on the Planet Thrive website. I found the Planet Thrive website linked from a website found from a post, from an admin, in my Fragrance Free group on Facebook.

PS. I checked out the University’s website. They have some interesting looking programs indeed.

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Glyphosate herbicide is IN ORGANIC

Organic is not always safe. This is hot off the press, atleast exposing those in the US who eat it. And was found thanks to one of my Fragrance Free Facebook group posts today.

I’m sorry, but, if I write amazing posts for everything, I’ll shut down and get nearly nothing else done. Theirs just way to much, coming in way to quickly. All the time. For me to do that. Not to mention this blog would literally, quickly, become several hundred pages or posts long. Or both. So, just read at least the first two articles at this URL. As it is, I have to limit a lot of resources to everyone, just to not overwhelm anyone.

http://healthimpactnews.com/2014/alert-certified-organic-food-grown-in-u-s-found-contaminated-with-glyphosate-herbicide/

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Keep Non GMO labeling in the US

In the US, this Tuesday/ Wednesday numerous buses all over the country are traveling to the DC area for free, filled with US citizens, hoping to convince congress and the capital to keep Non GMO labeling on our grocery products all over the country. Isn’t outrageous that the countries government would even consider abolishing this? ! It is! If you want to learn more check out the organic site ASAP. And follow the directions on what to do on their. Or wait for a better post on me about it. But, no promises it will be posted shortly. http://salsa3.salsalabs.com/o/50865/p/salsa/event/common/public/?event_KEY=80143

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Victoria Secret Reminder UPDATED

It’s the LAST DAY to get for free, or from Victoria Secret purchases, via catalog, an in person store, or online, any Secret REWARDS that I spoke about in a prior post last month. Shopping at there outlet stores WON’t GET YOU ANY REWARD. Nore will you be able to use your reward at a Victoria Secret Outlet. Which now equals 10$, 50$, 100$, or 500$, of Free VS money to spend on WHATEVER you want. And like I previously mentioned. After this year, they’ll be far less desirable to have. Since they are seriously reducing there product lines, and to far less sensory friendly and ideal merchandise.

Additional sweepstake opportunities are still available through December 19th, however without the right smart phone they maybe more difficult, to obtain. Remember, this is only for US, Puerto Rico, and most Canadians (Minus Quebec) . When I went to the following address my registration wasn’t properly processed. So, I called and spoke to an agent. Who processed my registration. You may be put on hold briefly to get an agent. To register for these sweepstakes without an iPhone, go to,

VictoriasSecret.com/Secret-Rewards

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“Sensory Treat” for kids with SPD and who have an Occupational Therapist

For optimal reduction of some sensory issues, you (The parent) and the young child with SPD. Should work with an Occupational therapist, and possibly a physical therapist too. I recently found a new app created buy OT’s, that is recommended obviously by occupational therapists to parents with young children in Sensory Integration Therapy, who are on a Sensory Diet. Those who are looking for an OT are more then welcome as well. However, the apple app hasn’t yet gotten there directory of OT’s available yet.

The app is free to download. The costs of the app, (which are not included in the Apple, App Store, description) required after your 1 week free trial, are 15$ for 3 months, 30$ for 6 months and 36$ for 12 months all rounded to the nearest dollar. The app has very limited access, on a free trial. I’ll let you check it out via the Apple App Store (or Google Play Store) for yourself, The various activity categories have one therapeutic activity, unlocked, each- during your trial. The categories are vestibular, oral, heavy work, jumping, deep pressure, and make your own. Except for the create your own category off course. However, on the trial you can only access one preset activity, that is the first one listed, in each category. So, even on a free trial you can’t see the full use capabilities of the app. I downloaded it for you all. But, obviously won’t be using it, or paying for it. So, I can’t really recommend it, just inform you of it’s presence.

In the Apple Store it’s called “Sensory Treat”, in the Google play App Store, it’s called, “Sensory Integration Therapy.”

If you know enough about SPD, or have read enough of this blog. You’d know the app above, isn’t covering all the areas those with Sensory issues may, and often, struggle with. This supports, that even OT’s don’t have all the answers either. However, I hope, with both the support from me (If you choose to accept it) , an OT, (If that’s an option for your child), and certain other professionals/ parents/ advocates/services. That in the future, all the areas will be covered and assisted to there max. Creating the healthiest, and happiest environment, for as many people, as possible.

If you use this app, after trying it for awhile I, and I’m sure, other readers would LOVE a review of it, ( good or bad, but, fair regardless) in the comments section below. Not just in the App Store of your choice.

Watch “Toxic Hot Seat” documentary FOR FREE

In the beginning of this past August I posted, to give you all a heads up, about a documentary that looks very good, but, off topic, called, “Toxic Hot Seat”. It is about the dangers of flame retardants in the US. In my previous post called “Movie, “Toxic Hot Seat”” I link you to the documentaries website, which remains to still have it’s trailer, among other things. I will be editing that post title to say documentary soon. There is also a very brief trailer on u tube (slightly over 2 mins to be exact) along with a 10 minute and 25 second, Filmmakers Q and A session on u tube about the documentary. Last August, I didn’t know how anyone, including me, could see the movie, realistically.

Sensory Issues, MCS, and Allergies, triggers and symptoms

In the beginning, if you aren’t super aware of your symptoms, and what might cause them. And know that there not normal. How will you know you need any solutions for them right? Or in the case of a loved one knowing, how will they understand, and be sensitive to your needs? Or even in some cases, help you cope and prevent them? Both you and they won’t be able to well, if at all. They also need to understand that numerous others have similar issues. This blog helps with them recognizing your not alone. But, so does this app! Which is mutually available in the apple and android store. The Google play and android market combined has 914 reviews on this app with an overall rating of 4 stars out out of 5. Although this app, doesn’t cover all kinds of symptoms super well, and it may be better suited more for families then individuals. (Next month, if your lucky, I’ll share an app that addresses these other things on my other blog) This one, does, what it does VERY well, without being overwhelming. As long as you turn on it’s notifications and put in your location for the weather forecast. It’s very customizable. So, your (Or your child’s, husbands, ect)) MCS, Roscia, or PSD, symptoms can defiantly easily be added. And the note section is crucial.

It has 1 Zyrtec add but, it doesn’t kill your battery. And it certainly isn’t annoying.

Bye the way, I bought this, researched many similar apps, and started using this one, before I noticed It’s android presence. Recognize symptoms for what they are ( this app may not due that for you, but, other free sources can), find out your causes, share them with your correct doctors, or close friends/ family. And cope or get rid of of them, as effectively as possibly! Because awareness, and others seeing, accepting, and accomodating, you/ your families needs. Are key, in finding solutions.

For the Apple Store the App is called just “Allergy”. For the Google android store it’s called “WebMD Allergy” there both the same. Completely free. And with a dandelion on the icon.

Holidays Like Thanksgiving

Here are a number of Websites that talk about customs and traditions for Holidays Similiar to Thanksgiving, around the world. Thangsgiving as many of you know is today in the US. I recommend, visiting the first one first one before any of the others, as it serves as a nice and brief overview.   Some, if not all of these, have somewhere in the US celebrations, for the immigrators and there families, from these places. However, wide knowledge of and celebration for them, are not present.

www.thanksgiving.org.uk/around-the-worlds.html

http://www.adoptvietnam.org/vietnamese/tet-trung-thu.htm

http;//en.m.wikipedia.org/wiki/Sukkot

www.en.wikipedia.org/wiki/Thai_Pongal

www.traveltips.usatoday.com/chuseok-festival-korea-103094.html

www.infoplease.com/spot/kwanzaa1.html

 

I know I said, in the other post this would be via a photo. My app won’t change to showing my post section right now. So, I’m on my chromebook. And haven’t figured out how to create and attach photos directly via my dashboard yet via the computer. sorry.

 

Happy Thanksgiving!

 

Holidays with PSD and MCS

In the States, once a year there is a holiday that is called Thanksgiving Day. Which if you haven’t heard yet, is today. Where typical foods eaten on it are, Turkey, mashed potato’s, turkey gravy, stuffing, cranberry sauce, pumpkin pie, pumpkin egg nog (If your really lucky).  And other things that are chosen buy the cooks of each family/group gathering.  Sometimes people eat under 3 meals a day since the Thanksgiving feast is so, large. And large groups of people who are often close to one another often gather to socialize and catch up with one another. However, throughout the world, there are many other very similar holidays.   Holidays that have the same or similar purpose.  To thank, whatever god you believe in, for the Harvest. And everything else your thankful for.

 

    In quickly reviewing the URLS in the photo I’ll create a new post for shortly. You can learn more about the other Holidays, people celebrate that are like their own Thanksgiving version. All over the world. At least one of the holidays is a couple days. And atleast a couple are a week long. Most are in August-October.  Except for Kwanzaa (Late December- Jan first) and Tai Pongal (Mid Jan).  Most are for the entire family.

   From what I can tell, some if not all of these holidays have some strong tasting foods, and unusual ones for our palets.  Many with SPD, struggle with change physically, not just with mental transitioning.   So if our brains can handle the social adaptations required without a shutdown or meltdown. It doesn’t mean our whole body can.  Which can defiantly be sometimes a problem, for many of us. Before, during, or after, eating problematic foods these reactions may occur. Sometimes, even up to a year after eating it if it has unhealthy gluten in it.

        Their are also, fragrance, and scent, issues people can be exposed to being around others. Those with PSD sometimes can’t even tolerate the smell of many strong smelling spices or food. I am no exception to this. Some with MCS, can even be hospitalized if exposed too certain chemicals. So, PLEASE be aware of and sensitive to these people especially.  These chemicals are often in household cleaners, clothing detergent, and body and hair products. Not just cologne and perfumes. Their ARE safer alternatives. Fresh lemon for example, in a cleaning product will make me black out. Lavendar if strong enough will do the same.  Among other problems. So, don’t think all organic is the way to go either.

   This year, like some of the more recent previous years. I’m eating on my own. Or atleast eating my own foods. But, with others. Why? Because, I can’t eat must if not any, of whatever others in my party are going to.  No cranberry, onions, sweet peppers, turnips, parsnips, turkey, stuffing, egg nog, or pumpkin anything for me. And no GF stuffing doesn’t work for me either. For one regular (and most rice) isn’t my friend. I have over 100 food intolerances. Some of which, include most spices, including black pepper.   And I NEVER drink alcohol or caffeinated beverages.  Did you know that brain fog is more likely if your exposed to unhealthy gluten?

   In conclusion, please don’t forget to remind people of your needs. Take Care of yourself, BEFORE making others happy. Be aware and accepting of what others needs are, and most importantly take care of each others health. No matter when,  how, or what  you call your holiday.

   And if you have SPD or MCS, diagnosed or not. Know your NOT alone. numerous others struggle during the holiday. But, let’s try to advocate for ourselves and each other. In the end, it will help others who don’t have these challenges, (But who interact with us) happier too.

 

National Autism Conference in Florida

Nov 13-16 th. This yr, (VERY SOON) there will be a National Autism Conference, mainly for parents, professionals, and maybe a few disability advocates- in Pete Beach, Florida! In that order of attendee focus. Bolded wording starts here- However, I believe it could also be helpful for some parents and professionals who help those with ADHD, PDD, PSD, the new social communication disorder, and possibly for parents with children with Roscia, or severe digestion issues. Including parents of kids with MCS. Partly, as inspiration. Folks attending for help on any of the bolded words do, need to very carefully select what they attend however. However, as far as ASD conferences go, (And I’ve now attended atleast a dozen) most offline. I strongly feel, it is, mostly geared for professionals and parents working with people classified, or who fit (Possibly not diagnosed) within the entire range of ASD. Bold ended at the previous ASD. Thier also was (And will be for conferences after this one) a limited number of single scholarships available mainly for desperately needed, parents.

It will be held at what claims to be a unique resort, where the staff is not only geared towards a family atmosphere. But also, have some autism training and awareness behind them as well! They say there an autism friendly resort. They even offer GF food options, at atleast one of there restaurants! I hope, it’s not GF sweets and junk food! Our community has way to much of that already. It’s pet friendly, both of which, could be GREAT for your ASD child and possibly your pocketbook too! I’m sure, babysitting services won’t be cheap, but, in that case, there’s actually hope, it might actually be good! How awesome would that be!? Have you seen the room variety or resort activity options?! I have! Check the last URL on the website obtained from the last link below.

The resort looks and sounds very impressive!

The conference itself, (without) lodging, food, and travel expenses is fairly cheap for what it is. About 100$ -$200 per person. (A professional US conference on a weekend normally is 250-600 per attendee. The reason I would say this one is possibly cheaper is,

1. Because the speakers are mainly functional medicine experts (Not doctors, or traditionally trained professionals.) this year, the biggest two, are Julie Matthew’s and Temple Grandin, who is the key note. Atleast a couple of the speakers are parents of autistic children. Atleast two of the speaker’s are on the spectrum. Julie (Not Julie Matthew’s, and Temple Grandin). See the speaker URL below.

2. It’s ran buy a National Autism Organization which probably has a nice pool of money coming in annually. Not to mention the cost of their Sponsors coming in. Some of which is from large corporations and companies.

3. It’s in a cheaper part of the country.

4. I’m guessing (Like an educated guess) but, it sounds like it’s held there annually. Why else would the resort be autism trained? An autism summer camp attends it? Less likely, but, I guess possible.

5. It’s geared towards parents a lot (Professionals, have there business, cover atleast part of it’s admission often).

6. It’s 3 days and they realize missing work is more likely, so they want to encourage attendance.

7. The recession. This one would be last, except it isn’t, because of why I needed 8 to be last.

Number reason 8 Is at the very bottom of this post. Buy the way, coming up with these 8 reasons was a piece of cake for me. The execution. And wording of it. Is a different story.

If you look at many of the topics addressed, you will see sensory issues, and environmental toxicity, as main topics. Did you notice the resort even has a Sensory Room for children? Who would of expected that!? This and it’s functional medicine slant, is all why I’m posting about it on this blog. The number one reason in my mind to go to something like this isn’t, to go broke, add more stress to your life, or honestly even too learn more info. (Although, you SHOULD learn more info.) it’s for networking. It’s too in grave that support exists, others have similiar challenges, to inspire, and to give you hope! Why do you think Temple, is so often the Keynote Speaker for them?

I can, do, and or will connect you already (Or hope to, provide you accept it) all these things to some degree. However, having it live, can take it to a whole new level for you. Especially, as a parent.

I recognize my wording is typically (NT) wrong in how I describe the resort. I in no way mean to degrade the resort or any of their employees. I applaud any positive efforts on there part. And I love that they have microwaves and refrigerators in atleast many of there rooms. However, some of my audience easily, directly, and succinctly for me, need the truth. And that is the best way, I know how to communicate it. Also, I recognize first hand, not only with my own issues. But, being in situations ect, with others with ASD. How challenging accomodating, and working with people with PSD, ASD, and other issues like it, can be. I know, especially working at a resort. How that magnifies even more, those challenges. Because, unless the resort staff literally, monthly, has several ASD visitors to deal with, and there parents, ect. (And I’d be shocked if that was the case) It’s impossible, for them all to be experts on caring for your children. Unless, of course they all excelled first at teaching kids of all ages in an ASD/ADHD exclusive setting. Like in a school for sp. needs students with these conditions. I get, leaving your child with a stranger. Esp. In a NEW territory for you AND that child is very hard. And possibly scary. And I KNOW, how hard, change, can be on the ASD individual, as well.

Buy the way, I should mention (I think,) since I know some would care. And it will teach you the tone of the conference too. Number 8 (From above) is, Autism Speaks backs and helps support this conference, and likely the organization as well.

http://nac.nationalautismassociation.org

http://nac.nationalautismassociation.org/speakers/speaker-bios/ This is my fav., conference detail page.

http://nac.nationalautismassociation.org/accommodations/autism-friendly If you have children, or want to check out the resort, in depth, after reading this brief page. Click on the Trade winds link at the bottom the page.

This aimed to be smaller font- I know, this is last second. And I can’t do anything about that. But, like I said in atleast 1 other post. These organizations 1 a yr, or more, have similiarly focused conferences, (Atleast in America, and likely in the UK, Europe, and Canada too). I’m not posting about them every time. This might be my only year I post about the National Autism Societies Conference.
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