The US mega Movie Theater chain AMC, now has several theaters across the country that show matinee shows in a SPD friendly way. At least, for some of our sensory issues. To see which theaters and possibly which movies go here/ also contact AMC or the AMC participating theater nearest to you. To see what makes a sensory friendly movie different however, check out on here my Jan post (That I just posted) called, Going to Plays with SPD.
In Denver, Colorado at the Lone Tree Arts Center on June 16, 2015 their was the first ever, Sensory Friendly Summit. Hosting 50 organizations and 80 participants. The STAR (Sensory Therapies and Research Center) joined the Sensory Processing Disorder Foundation (SPDF) to prepare Denver to be the FIRST city in the country to be the most Sensory friendly to people with these challenges= us. If it’s successful, the hope is that other cities will follow.
What changes this entails is not yet publicly shared. Which means if you or someone you care a lot about or work for. Would benefit from this (Or would if your area also did it) NOW is the time to speak up and contact the Movements leaders from the Lone Tree Arts Center or PHAMALY (For the Denver Area) or STAR or the SPDF area for the rest of the nation.
The SPDF and STAR Center this fall will be launching the first Sensory Friendly Certification nationwide for businesses and organizations joining in the movement. If you ask me. ( and there not :(. ) Scents and fragrances in places, as well as restaurant food quality, and many options for sensitive tummies should DEFIANTLY be encouraged. INCLUDING in hospitals. And enforced, for sensory friendly certification approval. If you could help this be focused on adults as well as children’s sensory needs. I’m certain far more then people with SPD, Autism, and Down Syndrome would be greatly positively effected and grateful. Think of all the extra business! People with MCS, autoimmune food issues, diabetics, ADHD, IBD, IBS, GF diets, and others would also come. Some who can’t now. Wouldn’t that be GREAT?!
First SPD live Summit in Denver! Scroll down the page slightly for the Sensory Processing Disorder’s Foundations July Newsletter.
I first learned about this via someone else’s post on a SPD Facebook group. Isn’t this exciting? SPD is going to hopefully be more widely accepted as a legit need. One that society will have to at least accept and somewhat understand.
We already have some plays and movies getting sensory friendly showings and performances. But, let’s expand the number offered. And increase the ways, and places, society should assist us. Who’s with me on this? Comment below if you are.
First off supplements unlike prescription meds rarely if ever are covered in the U.S. under health insurance plans. There sometimes very expensive. Especially the most natural, GMO free, Gluten free, and dairy free ones with no artificial colors, dies, flavors, or any other bad stuff including extra unneeded intolerant ingredients. Making them out of reach cost wise for many of us. Especially adults without parental or partner payment assistance for them.
They also take a little extra work to find the right one if a nutritionist or other holistically trained individual doesn’t advise you specifically on the right brand, or form of the supplement that will work for you. Tip- the Holistic Practitioners and or Amazon may only have the higher quality version of each supplement that could be ideal for you or your loved one. ( Same is true for other stuff too like Protein Powder)
However, the effectiveness of them on the SPD, ASD, sensitive community is discussed on Julie Matthew’s blog where she shares new research studies on the effects of Supplements and Vitamins on children and adults with ASD. Her blog entry is interesting and I recommend you check it out here Julie Matthew’s on Supplement need with ASD
On my Disability Advocate one dot com blog I recently sent you to a utube video with 10 possibly inspiring people with ASD highlighted in it. The first is a savant, who you can learn more about through this documentary on utube for free. After watching it, please feel free to comment on what you thought about it, /what you learned in it. The title of this 50 minute documentary is the title of this post.
Do you celebrate Easter or Passover? If so, which one?
I celebrate Easter! But, without the sweets, alcohol, spices, food intolerances, and gluten. Unlike most of my family. My family celebrates mostly with all the above. Why I won’t say, to copy me (Even if that’s the smartest thing to do, I’m sure some of you might laugh if I did). I will say, keep in mind your health, sensory needs, addiction factors, routines, and how those things will effect you both short and long term. Not just how they effect you. But, how your actions, delivery of actions, and the lack of them. How they effect, or may influence other’s as well. Even if it isn’t always obvious, when someone else notices them and let’s your actions change theirs. (Children are very easily influenced.) But, so are some adults with certain disabilities as well. Like some with ASD.
But, if your an adult. Most of all. Don’t get unwound from alcohol. That’s key no matter what extra differences you have, true. But, those who celebrate with you should appreciate you for you. And not for what alcohol makes you become. ( Same is true for any other toxin that may just be one for you and not them) If this isn’t true, there toxic. And you need, an untoxic family or group of close friends to celebrate with. If you celebrate at all.
If you need to/ should stay sober, in routine, and avoid what’s toxic, DO SO. Stay strong. And please know. You are SO not alone. But, do it tactfully.
Although this is rare. I’m pretty sick, yesterday both on and off anti-nausea meds I threw up 11 times. And the anti nausea meds provided at a clinic, were given through an IV. Yesterday, most of my day was at an urgent care clinic. Which is kinda like a small ER. Without 24 hr service. And isn’t connected to a hospital. This clinic, has a very small bed for all their patients. And off course fluorescent lighting, they just HAD to keep on. I was so glad my light sensitivity wasn’t significantly effected buy it.
Anyway, I have a stomach bug. With added excruciating sharp belly pain which till today, wasn’t given any meds that help that. That started Friday night. I’ve been in bed most of today. And pedialyte unflavored is my only drink option, for now.
Anyway, I have a rice intolerance, am GF, and have recently developed a corn intolerance. Sadly, Tylenol (which most are GF) aren’t rice or corn free. My mother is trying to get me not care about if foods or meds have any of my intolerances in them. Which off course, isn’t helping.
So, since some of us are GF, and corn free. I found this link to find meds we can take. I haven’t checked out her GF Meds link. But, she has one on this page.
This film about Synesthesia is called “An Eyeful of Sound”.
This is a very rare form of SPD that only about 4% of humans worldwide are known to have. At points, this approximately 10 minute video can be a little loud. So, this maybe sensory difficult for some with SPD however. In it, you’ll see and here about synesthesia. This is not on utube. This isn’t a Ted talk (Unlike my last Synesthesia post, with a video linked.). It is VERY different. And there are different forms of Synesthesia too. Interesting, right?
Enjoy! I did!
The upcoming films blog (of the Spectrum documentary) has some very good videos/ posts. I haven’t seen all the videos on it. Nore have I read and remember all the interviews. And some are Vimeo video’s not utube based. But, a few, I saw before today. And I just saw many of the videos as well. There not ALL SPD related. And in this post (If at all) I’m not going to cover all of the videos I like on this blog page. But, the first video I believe it is, with the little boy is very good. Also, there’s a trailer of a family with an autistic son called Mabul (The Flood) it’s not in English nore available for US or Canadian DVD players. Only for DVD players from region 2, countries. And I don’t believe it’s sub-titled in English either, the trailer wasn’t.
In my next post I’ll highlight one more video I liked a lot from this link. However, it will have a different link.
Want to see an upcoming documentary trailer for a film about Sensory Perception and Autism? Temple Grandin is in it. You do!? Great! It’s called Spectrum, and if you figure out how and when to see the full documentary before I post how here. Please DO SHARE buy commenting or e-mailing me. Here’s the link to the trailer. I’ll share anouther to a blog with interviews on it. In my next mini-post.
Happy New Year!
Here as promised is Rachel’s blog, and bio. The link she shared with me for you all. An adult with SPD who also is an expert in it.
Rachel Simone is the admin of the best SPD adults who have it support group on Facebook. She has it too off course. But, unlike me, she doesn’t have ASD or ADHD. But, for this utube video she shared today (And she knows I’m sharing it here too, off course) the fact that we both have SPD is enough. According to recent research. (see spdfoundation.net/otherdisorders.html) Most people with ASD have SPD. However, most with SPD DON’T have ASD.
As you should know, some with ADHD have SPD. But, she doesn’t have that either. Which is living proof you don’t need either to have SPD.
Anyway. I like her SPD experience’s demo- so, you can get a better taste of what life with it is like. I recommend watching it atleast twice. Especially if you are different. However, if you have SPD, make sure your ready for about a 5 minute commute, in one bustling, major city! And for you. Turn the sound slightly down.
Do, I relate to her experience? Somewhat. Do I understand it in a very real way. Yes. But, the details for that, is for anouther time. And my next post will have a link to her blog! Which is all about SPD research and stories.
Do you have, or know of anyone with Multiple Chemical Syndrome who has been part of ANY online support group(s)? Or someone with issues with wireless signals, electro magnetic data? Or who has a metal sensitivity? If not, are you in a support group that supports anyone online with these issues? If you are, then your help (Buy completing a maybe 10-20 minute survey.) Could contribute to further help, the professionals, find answers for these communities. Or atleast help them understand your supports. Your personal info will of course be kept confidential. You may also, find ways to improve your condition as well! Wouldn’t that be AWESOME!?
I took it yesterday. After, you start it, your allowed to skip any uncomfortable questions, or pause it, to complete it later.
Doctor Tarryn Phillips, from La Trobe University ( A major university throughout Australia). conducts this study. And (His ?) contact info can be found via the article on Planet Thrive and via the intro of the following link. Which is a link to the survey you or your friend or loved one can check out, and participate in.
Resource for this post came from-
I found this, under articles, on the Planet Thrive website. I found the Planet Thrive website linked from a website found from a post, from an admin, in my Fragrance Free group on Facebook.
PS. I checked out the University’s website. They have some interesting looking programs indeed.
In the beginning of this past August I posted, to give you all a heads up, about a documentary that looks very good, but, off topic, called, “Toxic Hot Seat”. It is about the dangers of flame retardants in the US. In my previous post called “Movie, “Toxic Hot Seat”” I link you to the documentaries website, which remains to still have it’s trailer, among other things. I will be editing that post title to say documentary soon. There is also a very brief trailer on u tube (slightly over 2 mins to be exact) along with a 10 minute and 25 second, Filmmakers Q and A session on u tube about the documentary. Last August, I didn’t know how anyone, including me, could see the movie, realistically.
In the beginning, if you aren’t super aware of your symptoms, and what might cause them. And know that there not normal. How will you know you need any solutions for them right? Or in the case of a loved one knowing, how will they understand, and be sensitive to your needs? Or even in some cases, help you cope and prevent them? Both you and they won’t be able to well, if at all. They also need to understand that numerous others have similar issues. This blog helps with them recognizing your not alone. But, so does this app! Which is mutually available in the apple and android store. The Google play and android market combined has 914 reviews on this app with an overall rating of 4 stars out out of 5. Although this app, doesn’t cover all kinds of symptoms super well, and it may be better suited more for families then individuals. (Next month, if your lucky, I’ll share an app that addresses these other things on my other blog) This one, does, what it does VERY well, without being overwhelming. As long as you turn on it’s notifications and put in your location for the weather forecast. It’s very customizable. So, your (Or your child’s, husbands, ect)) MCS, Roscia, or PSD, symptoms can defiantly easily be added. And the note section is crucial.
It has 1 Zyrtec add but, it doesn’t kill your battery. And it certainly isn’t annoying.
Bye the way, I bought this, researched many similar apps, and started using this one, before I noticed It’s android presence. Recognize symptoms for what they are ( this app may not due that for you, but, other free sources can), find out your causes, share them with your correct doctors, or close friends/ family. And cope or get rid of of them, as effectively as possibly! Because awareness, and others seeing, accepting, and accomodating, you/ your families needs. Are key, in finding solutions.
For the Apple Store the App is called just “Allergy”. For the Google android store it’s called “WebMD Allergy” there both the same. Completely free. And with a dandelion on the icon.
Here are a number of Websites that talk about customs and traditions for Holidays Similiar to Thanksgiving, around the world. Thangsgiving as many of you know is today in the US. I recommend, visiting the first one first one before any of the others, as it serves as a nice and brief overview. Some, if not all of these, have somewhere in the US celebrations, for the immigrators and there families, from these places. However, wide knowledge of and celebration for them, are not present.
I know I said, in the other post this would be via a photo. My app won’t change to showing my post section right now. So, I’m on my chromebook. And haven’t figured out how to create and attach photos directly via my dashboard yet via the computer. sorry.
In the States, once a year there is a holiday that is called Thanksgiving Day. Which if you haven’t heard yet, is today. Where typical foods eaten on it are, Turkey, mashed potato’s, turkey gravy, stuffing, cranberry sauce, pumpkin pie, pumpkin egg nog (If your really lucky). And other things that are chosen buy the cooks of each family/group gathering. Sometimes people eat under 3 meals a day since the Thanksgiving feast is so, large. And large groups of people who are often close to one another often gather to socialize and catch up with one another. However, throughout the world, there are many other very similar holidays. Holidays that have the same or similar purpose. To thank, whatever god you believe in, for the Harvest. And everything else your thankful for.
In quickly reviewing the URLS in the photo I’ll create a new post for shortly. You can learn more about the other Holidays, people celebrate that are like their own Thanksgiving version. All over the world. At least one of the holidays is a couple days. And atleast a couple are a week long. Most are in August-October. Except for Kwanzaa (Late December- Jan first) and Tai Pongal (Mid Jan). Most are for the entire family.
From what I can tell, some if not all of these holidays have some strong tasting foods, and unusual ones for our palets. Many with SPD, struggle with change physically, not just with mental transitioning. So if our brains can handle the social adaptations required without a shutdown or meltdown. It doesn’t mean our whole body can. Which can defiantly be sometimes a problem, for many of us. Before, during, or after, eating problematic foods these reactions may occur. Sometimes, even up to a year after eating it if it has unhealthy gluten in it.
Their are also, fragrance, and scent, issues people can be exposed to being around others. Those with PSD sometimes can’t even tolerate the smell of many strong smelling spices or food. I am no exception to this. Some with MCS, can even be hospitalized if exposed too certain chemicals. So, PLEASE be aware of and sensitive to these people especially. These chemicals are often in household cleaners, clothing detergent, and body and hair products. Not just cologne and perfumes. Their ARE safer alternatives. Fresh lemon for example, in a cleaning product will make me black out. Lavendar if strong enough will do the same. Among other problems. So, don’t think all organic is the way to go either.
This year, like some of the more recent previous years. I’m eating on my own. Or atleast eating my own foods. But, with others. Why? Because, I can’t eat must if not any, of whatever others in my party are going to. No cranberry, onions, sweet peppers, turnips, parsnips, turkey, stuffing, egg nog, or pumpkin anything for me. And no GF stuffing doesn’t work for me either. For one regular (and most rice) isn’t my friend. I have over 100 food intolerances. Some of which, include most spices, including black pepper. And I NEVER drink alcohol or caffeinated beverages. Did you know that brain fog is more likely if your exposed to unhealthy gluten?
In conclusion, please don’t forget to remind people of your needs. Take Care of yourself, BEFORE making others happy. Be aware and accepting of what others needs are, and most importantly take care of each others health. No matter when, how, or what you call your holiday.
And if you have SPD or MCS, diagnosed or not. Know your NOT alone. numerous others struggle during the holiday. But, let’s try to advocate for ourselves and each other. In the end, it will help others who don’t have these challenges, (But who interact with us) happier too.
That are in the US that are neurologically, environmentally, or sensory effected ONLY.
I though some of you might benefit from this. I may not follow it, in when I share stuff though.
April May and October have the most going on
January LD’s. Transferred here.
February OCD a week only. Other blog then recover/ prep.
Brain Injuries may move to the other blog
Nutrition month other blog the GAPS diet is introduced on this one.
ASD or Autism Spectrum conditions April
IBS. Month, I add other food related non diabetic or specific diet issues.
MCS- and Environmental illness.
Melanoma/Skin Cancer Detection and Prevention Month, next yr
Brain Tumor Action Week, next yr other blog
Blood Cancer Advocacy Day.next yr other blog?
Better Sleep Month, May not include on this blog
Celiac disease is May. Both blogs. The food part only is on this one
Mental health month switching too December with the depression focus too for special populations only.
All the following covered on my next blog except the last.
National Cancer Survivors Day,
Young Adult Cancer awareness week moved from April
I create Sleep month transferred here and (Other blog)
1 week sleep too much
1 week sleep too little
1 week difficulty falling asleep and staying asleep.
1 week other sleep challenges. Or possibly just an overview of week 1-3 to stay on the topic of sensory issues.
PTSD 27 th is the awareness day. I’ll make it into a week in JULY . This Blog
July this blog
Roscia other three weeks are Roscia focused
PTSD – both
August. This blog
Sojourner’s Syndrome an autoimmune disorder
And other unusual or non mentioned relevant conditions. Like-
Passing out condition neurologically based only
Dizzy issues called
Childhood Cancer Awareness, other blog
This blog since their environmental diseases –
Leukemia and Lymphoma Awareness, which are
Environmental Cancers and blood Cancer types. It’s also blood related cancer Awareness Month.
It’s also, fatigue cancer awareness not sure if I’m going to cover yet
Breast Cancer Awareness Month – merchandise chemical prevention month
Learning Disabilities or LD, including Apraxia, Dysgraphia, Dyslexia, and ADHD October. Dyscalculia New PDD ? tRANsfer to JAn
Other Skin issues NOT roscia. Like excema/dermatitis too much oil in hair issue.
Diabetes, especially Type and prevention
Other blog – Mental Health Month including
Depression how it differs in special diagnosis’s.
Anxiety how it differs in special populations
Months not taken or Available
June, Sleep Month
August unusual other issues, and co-morbid issues
Thanks to a variety of allergies and issues one may have with scents, fragrances, and chemicals. It seems some public places are starting to try to accommodate us. Until very recently, I didn’t know that the public banned scents and fragrances anywhere (Except at 2 week long adult Autism conference’s for mainly if not solely only for those with it). Did you know that before now? I think it’s great for those with ASD who are effected buy it (Including myself), SPD (Sensory Processing Disorder), MCS (Multiple Chemical Sensitivities), ADHD, allergies, and all the other types of sensory issues one may have. In some ways it’s great for those without it too. Due to the toxins and other dangerous additives and ingrediants even those without the issues would otherwise be exposed too. However, we both know, there’s almost no truly fragrance free and unscented products out their. And I’m certain those in those banned areas. Few, if any use the few products I will recommend in my book. Or the ones I don’t, that fit that bill. So, although less fragrance is better then more. I highly doubt, especially with how many benifit from certain aspects of scents. That society will ever be trully fragrance free and unscented. There in nearly everything, and I think there’s no way to be 100% free of them anywhere. Even if everyone did only use the products I know of that fit that bill. What do you think? These articles consider this, or state places that are now trying to enforce this. Atleast if your in them, and they need too.
Even Canada has something to say about this.
http://www.northernlife.ca/news/letterstotheeditor/2013/06/19-McLean-smoking-bylaw-sudbury.aspx. I like that this addresses plants and trees too!
Here is what some NT’s think of this last linked article. I’d love to see your comments to this post. Also, scroll down a bit on the below link to get to the better comments.
These aren’t the only links I found addressing this. However, that’s enough articles for 1 post. Hope you find this useful.
Proof that texture, taste, and other challenges make our food options sometimes more of a challenge. Then some may expect. Particularly, with folks with ASD, and LD’s, including ADHD. And especially with uncommon ingrediants grown in countries possibly ( this second part is an educated guess) with different chemical standards ( hint hint!) Maybe another post, I’ll eventually share what issues I have with some of these ingrediants in certain states or preparations. I challenge you to ask yourself questions on why these issues exist in me. It could be good practice for your loved one(s), or friend (s), who may have other significant challenges, that you don’t have perhaps ( That you need to be sensitive too) since there hopefully okay with, or tolerate your challenges. Your feelings of these challenges should differ somewhat depending on the type of relationship(s) that we’re talking about. But, we regress.
Great example is broccoli
Broccoli sprouts- no, taste like turnips (That reminds me of parsnips, did I tell u I can’t have that either?) but, parsnips in mashed potatoes taste great! But, I can’t have them 🙁
American broccoli or broccoli flower yes if cooked. No if not. As a baby unless you purred it and cooked the heads only I could eat it. I couldn’t eat as a baby eat it in any other form.
Chinese broccoli no, never.
Cauliflower is different because there’s less stem and there softer and bigger.
Grapes ( in a raw cold state) I can have the purple not the green. But, get this. I can’t have it in a drink of 100% juice, with no added non natural sugar. It will give me a soar throat. 🙁 the white grape juice too, but, it takes longer. I can only have grapes in a raw state. Not in wine, or any other form.
Did you know that all the sugar free jams and jellies all have to have enough sugar in it to stay tog? Do you also know what concentrate all of them in the US use in there sugar free versions? Grape.
Did you know you get more lycopene in cooked tomatoes then in eating most regular sized ones at room temperature? Did you know lycopene helps reverse/prevent sun damage ?
Regardless, I can eat the red ones, brown ones, and orange ones! I can eat but, don’t prefer the baby tomatoes. Did you know the non-organic mini tomatoes have the most pesticides on them? They do!
I love ripe purple plums but, can’t stand the reddish ones. Same with cherries.
The only citrus I can defiantly eat, and maybe wear, or be strongly exposed too is clementines. However, to my recollection, I only remember encountering them, too devour it! No tangerines, lemons, limes, oranges, or citrus cleaners, or cosmetics! But, clementines, are great! Aren’t they?
As you know I can only eat onions if there cooked. They have to be translucent or I won’t eat them. But, I can’t have the red ones in any form. They give me stomach issues and diarrhea. Which the first will do in a less then a well enough cooked and very thinly sliced, prepared fashion. Which could increase my anxiety too.
I’m 33 and have SPD among other diagnosis. However, as of this writing SPD isn’t a separate diagnosis yet. Some of my other issues are ASD ( although, I prefer to refer to it as Asperger’s), Dyslexia, hyperinsomnia, IBS, and ADD. I’m only sharing this with you so you could see part of what has driven me to become an expert in what I know. But, like I said, this was only part of it, and off course, this blog is about helping YOU all . And me secondary. That and societies desperately needed time to catch up more with dealing better with the challenges tackled within this site, is a big reason on why it’s taken so long to publish it.
And still with all that waiting, although, I’m proud of societies progress that we’ve made in creating sensory solutions. We still have a ways to go, unfortunately.
As for why else do I care? If you haven’t noticed, as a whole, Aspies are the kindest high functioning folks bare none. And therefore, my desire to help you grow and improve ( IF you take appropriate action) is at an all time high. And I REALLY want feedback and constructive criticism.