Research shows IBS (Otherwise known as Irratible Bowel Syndrome) effects 58 million people in the US. With a 2 to 1 Women to man ratio. Most people with Fibromyalgia, Chronic Fatigue Syndrome, and Autism have it. And numerous others with a large variety of other conditions also do. From MCS, Celiacs, ADHD, PTSD, Anxiety disorder’s, Dyspraxia, Dysgraphia, Intestinal permeability (Otherwise known as Leaky Gut), Candida, SIBO, Neurological Differences, Gut Dysbiosis, Gulf War Syndrome, Depression, and many more.
Watch this video only till the host is done showing you the insides of a colon. Although, the host is accurate that typically IBS and it’s symptoms don’t kill people. It can. 1 example of how it could kill someone (And Did) is shown in an article on my nontoxic4us blog post called, “Pooping is no laughing matter!” IBS symptoms include internal inflammation that may or may not be seen or felt inside of you/externally (However, often, it is felt). Enough internal inflammation can cause all kinds of problems- especially if it hangs around too long. Including Cancer. An external common symptom/consequence (Especially if Constipated/and most likely if you have ASD too) is bloating.
Want to learn about Sensory Processing Disorder from a female’s perspective? Not any female either. A cute 4 year old named Evie Newbold! The needs and challenges she face are the same as an adult with it. I must say out of all the SPD videos on U tube. Her’s easily is one of my favorites. If not my favorite. It’s positive, accurate, thorough, short, and really easy too watch. Check it out! It’s only 4 minutes long.
And if on facebook. Like her too! (That tells her you appreciated it and want more to come).
Many of my readers here know SPD isn’t only found among those with Autism/ADHD/Dyspraxia. But, did you know there’s now proof? Did you also know that SPD presents differently in those on the ASD spectrum? You can have just a Sensory Processing Disorder too. Go to this article to see brain images showing some of this. In this article the images can enlarge if you click on them.
Ever wonder why SPD (or Sensory Integration Disorder) use to never be in the diagnostic statistical manual? Or DSM? Which is the bible for psychiatrists and psychologists. It’s partly because they didn’t have any brain pictures of those with it too compare with those who don’t have it. Now there’s actual scientific proof it exists. Two years ago University of California researchers used an advanced MRI technique and found the first biological evidence (And therefore, proof) that SPD exists. They also, saw differences among people with it who did vs. did not have Autism.
What to see the article and some of the brain images showing this scientific evidence? In the website address there should be no space between disorders- and kidsi at the end. So correct it if you copy and paste it in a search engine. Auto correct wouldn’t let me spell it correctly when I put no space.
The US mega Movie Theater chain AMC, now has several theaters across the country that show matinee shows in a SPD friendly way. At least, for some of our sensory issues. To see which theaters and possibly which movies go here/ also contact AMC or the AMC participating theater nearest to you. To see what makes a sensory friendly movie different however, check out on here my Jan post (That I just posted) called, Going to Plays with SPD.
In Denver, Colorado at the Lone Tree Arts Center on June 16, 2015 their was the first ever, Sensory Friendly Summit. Hosting 50 organizations and 80 participants. The STAR (Sensory Therapies and Research Center) joined the Sensory Processing Disorder Foundation (SPDF) to prepare Denver to be the FIRST city in the country to be the most Sensory friendly to people with these challenges= us. If it’s successful, the hope is that other cities will follow.
What changes this entails is not yet publicly shared. Which means if you or someone you care a lot about or work for. Would benefit from this (Or would if your area also did it) NOW is the time to speak up and contact the Movements leaders from the Lone Tree Arts Center or PHAMALY (For the Denver Area) or STAR or the SPDF area for the rest of the nation.
The SPDF and STAR Center this fall will be launching the first Sensory Friendly Certification nationwide for businesses and organizations joining in the movement. If you ask me. ( and there not :(. ) Scents and fragrances in places, as well as restaurant food quality, and many options for sensitive tummies should DEFIANTLY be encouraged. INCLUDING in hospitals. And enforced, for sensory friendly certification approval. If you could help this be focused on adults as well as children’s sensory needs. I’m certain far more then people with SPD, Autism, and Down Syndrome would be greatly positively effected and grateful. Think of all the extra business! People with MCS, autoimmune food issues, diabetics, ADHD, IBD, IBS, GF diets, and others would also come. Some who can’t now. Wouldn’t that be GREAT?!
I first learned about this via someone else’s post on a SPD Facebook group. Isn’t this exciting? SPD is going to hopefully be more widely accepted as a legit need. One that society will have to at least accept and somewhat understand.
We already have some plays and movies getting sensory friendly showings and performances. But, let’s expand the number offered. And increase the ways, and places, society should assist us. Who’s with me on this? Comment below if you are.
First off supplements unlike prescription meds rarely if ever are covered in the U.S. under health insurance plans. There sometimes very expensive. Especially the most natural, GMO free, Gluten free, and dairy free ones with no artificial colors, dies, flavors, or any other bad stuff including extra unneeded intolerant ingredients. Making them out of reach cost wise for many of us. Especially adults without parental or partner payment assistance for them.
They also take a little extra work to find the right one if a nutritionist or other holistically trained individual doesn’t advise you specifically on the right brand, or form of the supplement that will work for you. Tip- the Holistic Practitioners and or Amazon may only have the higher quality version of each supplement that could be ideal for you or your loved one. ( Same is true for other stuff too like Protein Powder)
However, the effectiveness of them on the SPD, ASD, sensitive community is discussed on Julie Matthew’s blog where she shares new research studies on the effects of Supplements and Vitamins on children and adults with ASD. Her blog entry is interesting and I recommend you check it out here Julie Matthew’s on Supplement need with ASD
On my Disability Advocate one dot com blog I recently sent you to a utube video with 10 possibly inspiring people with ASD highlighted in it. The first is a savant, who you can learn more about through this documentary on utube for free. After watching it, please feel free to comment on what you thought about it, /what you learned in it. The title of this 50 minute documentary is the title of this post.
Do you celebrate Easter or Passover? If so, which one?
I celebrate Easter! But, without the sweets, alcohol, spices, food intolerances, and gluten. Unlike most of my family. My family celebrates mostly with all the above. Why I won’t say, to copy me (Even if that’s the smartest thing to do, I’m sure some of you might laugh if I did). I will say, keep in mind your health, sensory needs, addiction factors, routines, and how those things will effect you both short and long term. Not just how they effect you. But, how your actions, delivery of actions, and the lack of them. How they effect, or may influence other’s as well. Even if it isn’t always obvious, when someone else notices them and let’s your actions change theirs. (Children are very easily influenced.) But, so are some adults with certain disabilities as well. Like some with ASD.
But, if your an adult. Most of all. Don’t get unwound from alcohol. That’s key no matter what extra differences you have, true. But, those who celebrate with you should appreciate you for you. And not for what alcohol makes you become. ( Same is true for any other toxin that may just be one for you and not them) If this isn’t true, there toxic. And you need, an untoxic family or group of close friends to celebrate with. If you celebrate at all.
If you need to/ should stay sober, in routine, and avoid what’s toxic, DO SO. Stay strong. And please know. You are SO not alone. But, do it tactfully.
Although this is rare. I’m pretty sick, yesterday both on and off anti-nausea meds I threw up 11 times. And the anti nausea meds provided at a clinic, were given through an IV. Yesterday, most of my day was at an urgent care clinic. Which is kinda like a small ER. Without 24 hr service. And isn’t connected to a hospital. This clinic, has a very small bed for all their patients. And off course fluorescent lighting, they just HAD to keep on. I was so glad my light sensitivity wasn’t significantly effected buy it.
Anyway, I have a stomach bug. With added excruciating sharp belly pain which till today, wasn’t given any meds that help that. That started Friday night. I’ve been in bed most of today. And pedialyte unflavored is my only drink option, for now.
Anyway, I have a rice intolerance, am GF, and have recently developed a corn intolerance. Sadly, Tylenol (which most are GF) aren’t rice or corn free. My mother is trying to get me not care about if foods or meds have any of my intolerances in them. Which off course, isn’t helping.
So, since some of us are GF, and corn free. I found this link to find meds we can take. I haven’t checked out her GF Meds link. But, she has one on this page.
This is a very rare form of SPD that only about 4% of humans worldwide are known to have. At points, this approximately 10 minute video can be a little loud. So, this maybe sensory difficult for some with SPD however. In it, you’ll see and here about synesthesia. This is not on utube. This isn’t a Ted talk (Unlike my last Synesthesia post, with a video linked.). It is VERY different. And there are different forms of Synesthesia too. Interesting, right?
The upcoming films blog (of the Spectrum documentary) has some very good videos/ posts. I haven’t seen all the videos on it. Nore have I read and remember all the interviews. And some are Vimeo video’s not utube based. But, a few, I saw before today. And I just saw many of the videos as well. There not ALL SPD related. And in this post (If at all) I’m not going to cover all of the videos I like on this blog page. But, the first video I believe it is, with the little boy is very good. Also, there’s a trailer of a family with an autistic son called Mabul (The Flood) it’s not in English nore available for US or Canadian DVD players. Only for DVD players from region 2, countries. And I don’t believe it’s sub-titled in English either, the trailer wasn’t.
In my next post I’ll highlight one more video I liked a lot from this link. However, it will have a different link.
Want to see an upcoming documentary trailer for a film about Sensory Perception and Autism? Temple Grandin is in it. You do!? Great! It’s called Spectrum, and if you figure out how and when to see the full documentary before I post how here. Please DO SHARE buy commenting or e-mailing me. Here’s the link to the trailer. I’ll share anouther to a blog with interviews on it. In my next mini-post.
Rachel Simone is the admin of the best SPD adults who have it support group on Facebook. She has it too off course. But, unlike me, she doesn’t have ASD or ADHD. But, for this utube video she shared today (And she knows I’m sharing it here too, off course) the fact that we both have SPD is enough. According to recent research. (see spdfoundation.net/otherdisorders.html) Most people with ASD have SPD. However, most with SPD DON’T have ASD.
As you should know, some with ADHD have SPD. But, she doesn’t have that either. Which is living proof you don’t need either to have SPD.
Anyway. I like her SPD experience’s demo- so, you can get a better taste of what life with it is like. I recommend watching it atleast twice. Especially if you are different. However, if you have SPD, make sure your ready for about a 5 minute commute, in one bustling, major city! And for you. Turn the sound slightly down.
Do, I relate to her experience? Somewhat. Do I understand it in a very real way. Yes. But, the details for that, is for anouther time. And my next post will have a link to her blog! Which is all about SPD research and stories.
Do you have, or know of anyone with Multiple Chemical Syndrome who has been part of ANY online support group(s)? Or someone with issues with wireless signals, electro magnetic data? Or who has a metal sensitivity? If not, are you in a support group that supports anyone online with these issues? If you are, then your help (Buy completing a maybe 10-20 minute survey.) Could contribute to further help, the professionals, find answers for these communities. Or atleast help them understand your supports. Your personal info will of course be kept confidential. You may also, find ways to improve your condition as well! Wouldn’t that be AWESOME!?
I took it yesterday. After, you start it, your allowed to skip any uncomfortable questions, or pause it, to complete it later.
Doctor Tarryn Phillips, from La Trobe University ( A major university throughout Australia). conducts this study. And (His ?) contact info can be found via the article on Planet Thrive and via the intro of the following link. Which is a link to the survey you or your friend or loved one can check out, and participate in.
In the beginning of this past August I posted, to give you all a heads up, about a documentary that looks very good, but, off topic, called, “Toxic Hot Seat”. It is about the dangers of flame retardants in the US. In my previous post called “Movie, “Toxic Hot Seat”” I link you to the documentaries website, which remains to still have it’s trailer, among other things. I will be editing that post title to say documentary soon. There is also a very brief trailer on u tube (slightly over 2 mins to be exact) along with a 10 minute and 25 second, Filmmakers Q and A session on u tube about the documentary. Last August, I didn’t know how anyone, including me, could see the movie, realistically.
In the beginning, if you aren’t super aware of your symptoms, and what might cause them. And know that there not normal. How will you know you need any solutions for them right? Or in the case of a loved one knowing, how will they understand, and be sensitive to your needs? Or even in some cases, help you cope and prevent them? Both you and they won’t be able to well, if at all. They also need to understand that numerous others have similar issues. This blog helps with them recognizing your not alone. But, so does this app! Which is mutually available in the apple and android store. The Google play and android market combined has 914 reviews on this app with an overall rating of 4 stars out out of 5. Although this app, doesn’t cover all kinds of symptoms super well, and it may be better suited more for families then individuals. (Next month, if your lucky, I’ll share an app that addresses these other things on my other blog) This one, does, what it does VERY well, without being overwhelming. As long as you turn on it’s notifications and put in your location for the weather forecast. It’s very customizable. So, your (Or your child’s, husbands, ect)) MCS, Roscia, or PSD, symptoms can defiantly easily be added. And the note section is crucial.
It has 1 Zyrtec add but, it doesn’t kill your battery. And it certainly isn’t annoying.
Bye the way, I bought this, researched many similar apps, and started using this one, before I noticed It’s android presence. Recognize symptoms for what they are ( this app may not due that for you, but, other free sources can), find out your causes, share them with your correct doctors, or close friends/ family. And cope or get rid of of them, as effectively as possibly! Because awareness, and others seeing, accepting, and accomodating, you/ your families needs. Are key, in finding solutions.
For the Apple Store the App is called just “Allergy”. For the Google android store it’s called “WebMD Allergy” there both the same. Completely free. And with a dandelion on the icon.
Here are a number of Websites that talk about customs and traditions for Holidays Similiar to Thanksgiving, around the world. Thangsgiving as many of you know is today in the US. I recommend, visiting the first one first one before any of the others, as it serves as a nice and brief overview. Some, if not all of these, have somewhere in the US celebrations, for the immigrators and there families, from these places. However, wide knowledge of and celebration for them, are not present.
I know I said, in the other post this would be via a photo. My app won’t change to showing my post section right now. So, I’m on my chromebook. And haven’t figured out how to create and attach photos directly via my dashboard yet via the computer. sorry.
In the States, once a year there is a holiday that is called Thanksgiving Day. Which if you haven’t heard yet, is today. Where typical foods eaten on it are, Turkey, mashed potato’s, turkey gravy, stuffing, cranberry sauce, pumpkin pie, pumpkin egg nog (If your really lucky). And other things that are chosen buy the cooks of each family/group gathering. Sometimes people eat under 3 meals a day since the Thanksgiving feast is so, large. And large groups of people who are often close to one another often gather to socialize and catch up with one another. However, throughout the world, there are many other very similar holidays. Holidays that have the same or similar purpose. To thank, whatever god you believe in, for the Harvest. And everything else your thankful for.
In quickly reviewing the URLS in the photo I’ll create a new post for shortly. You can learn more about the other Holidays, people celebrate that are like their own Thanksgiving version. All over the world. At least one of the holidays is a couple days. And atleast a couple are a week long. Most are in August-October. Except for Kwanzaa (Late December- Jan first) and Tai Pongal (Mid Jan). Most are for the entire family.
From what I can tell, some if not all of these holidays have some strong tasting foods, and unusual ones for our palets. Many with SPD, struggle with change physically, not just with mental transitioning. So if our brains can handle the social adaptations required without a shutdown or meltdown. It doesn’t mean our whole body can. Which can defiantly be sometimes a problem, for many of us. Before, during, or after, eating problematic foods these reactions may occur. Sometimes, even up to a year after eating it if it has unhealthy gluten in it.
Their are also, fragrance, and scent, issues people can be exposed to being around others. Those with PSD sometimes can’t even tolerate the smell of many strong smelling spices or food. I am no exception to this. Some with MCS, can even be hospitalized if exposed too certain chemicals. So, PLEASE be aware of and sensitive to these people especially. These chemicals are often in household cleaners, clothing detergent, and body and hair products. Not just cologne and perfumes. Their ARE safer alternatives. Fresh lemon for example, in a cleaning product will make me black out. Lavendar if strong enough will do the same. Among other problems. So, don’t think all organic is the way to go either.
This year, like some of the more recent previous years. I’m eating on my own. Or atleast eating my own foods. But, with others. Why? Because, I can’t eat must if not any, of whatever others in my party are going to. No cranberry, onions, sweet peppers, turnips, parsnips, turkey, stuffing, egg nog, or pumpkin anything for me. And no GF stuffing doesn’t work for me either. For one regular (and most rice) isn’t my friend. I have over 100 food intolerances. Some of which, include most spices, including black pepper. And I NEVER drink alcohol or caffeinated beverages. Did you know that brain fog is more likely if your exposed to unhealthy gluten?
In conclusion, please don’t forget to remind people of your needs. Take Care of yourself, BEFORE making others happy. Be aware and accepting of what others needs are, and most importantly take care of each others health. No matter when, how, or what you call your holiday.
And if you have SPD or MCS, diagnosed or not. Know your NOT alone. numerous others struggle during the holiday. But, let’s try to advocate for ourselves and each other. In the end, it will help others who don’t have these challenges, (But who interact with us) happier too.